Nov 1, 2010

Why Isn’t Anyone Talking About Lyme Disease?

How Many Mystery Illnesses Are Misdiagnosed Cases of Lyme Disease?

Over the last year or so, Whistle Blowers has been contacted by many individuals sharing their stories about Lyme Disease. They all share common experiences of prolonged misdiagnosis by multiple doctors, limited access to treatment and in many cases, denial of long term treatment. Lyme Disease, a condition caused by a bacteria carried by ticks, is not thought to be a common affliction in the UK, though it is difficult to diagnose since it can take months or even years to manifest itself and the symptoms mimic a number of other conditions. Standard testing is not terribly accurate (about 50%), and the more accurate method of testing is often denied potential patients because it costs more. However, with more people speaking up about their experiences, it may be time to re-evaluate the methods used to verify Lyme Disease and the course of treatment used.

Anecdotally, this treatable disease appears to be more common than previously thought. Though the NHS claims that ticks and Lyme Disease are only found in isolated parts of the UK (therefore doctors dismiss possible Lyme cases as improbable, if it was even considered at all), veterinarians and animal groomers who regularly remove ticks from household pets tell a different story. Whistle Blowers has also heard about research in Scotland that indicates ticks carrying the bacteria are far more prevalent than initially suspected. Ticks appear to be endemic to many parts of the UK, which would appear to increase the risk people contracting Lyme Disease. So why isn’t there more awareness? Why does the NHS choose to look the other way? And why are so many people left to fight a difficult disease with very limited support?

Have you experienced a host of strange symptoms that seem to mirror other illnesses such as fibromyalgia, MS, chronic fatigue etc? Have you been diagnosed with Lymes? How did you find the treatment and experience? We want to hear your stories about this.

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